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We were hopeful that now that we were admitted into the hospital, we would get some answers. But her doctors seemed stumped. Finally, her surgeon explained Hirschsprung’s Disease to us and stated he wanted to do a biopsy to determine if this is what she had. I remember asking him, did he think it was HD or was he testing her to rule it out? He quickly responded, “ to rule it out”. Faith did not present with the typical HD symptom. The really only issue she had was not being able to poop. No green bile, no projectile vomiting. She didn’t eat much, but I knew she was full of poop. She would spit up, more than normal, but like I said it wasn’t projectile. She also passed her meconium (or so I was told) at the hospital. So, our surgeon said IF it was HD, it was probably a mild case of it (short or ultra short segment).
Well, Faith had her biopsy done in her hospital room. It was quick and did not seem to bother her too much. After a day or two , the results were in… she had HD.
It is funny, I can still see her surgeon and her nutritionist coming to tell us the news. Their faces were so somber. But, my husband and I welcomed the diagnosis. Now we knew what was going on with our sweet girl! No one ever wants to hear their child has a serious medical condition of course. But it was such a relief to have a name to this horrid disease. Now we could move on to helping her get better!